Investigating National Stakeholder Involvement in Mental Health Services Research (PCOR/CER)
A national extension of several of our core local focus areas and goals, we are also undertaking a multi-phase co-produced mixed methods needs assessments designed to map barriers and facilitators to research involvement in mental health services research across the US.
Phase 1 co-design workshops are currently in progress and include both individual peer and family leaders, members of under-represented racial/ethnic/cultural and sexual minority groups, community non-profit staff and leadership, and providers working i mental health service agencies. In addition, researchers from throughout the US are involved.
Co-Design Workshops focus on discussion and brainstorming of barriers and facilitators to meaningful stakeholder involvement and leadership in the United States. We will consider both structural factors (including IRB coverage of community members, access to funding, funder stipulations regarding non-academic team members) and interpersonal factors (power and power hierarchies as they operate within university-community teams or involvement initiatives. Dedicated groups will focus on race (racism, structural racism as these manifest in participatory research) and youth/young adult issues. Discussion will be premised on the idea that there is a spectrum of participation, with barriers and facilitators operating in different ways across different types and levels of involvement -- see e.g. the involvement spectrum at the right for a simplified depiction of levels/degrees of stakeholder involvement.